What to expect:
Engaging with research allows individuals and care partners to contribute to a growing body of knowledge that can benefit larger communities. It helps improve the quality of care, empowers individuals to navigate the healthcare system, and identifies gaps and needs in healthcare delivery.
For people living with Parkinsonism
Active participation in research can lead to better management of symptoms, an understanding of your wishes, and a better quality of life. It empowers individuals to navigate the healthcare system and actively participate in their care.
For care partners
Care partners are essential contributors to research, offering invaluable input and experiences that enhance healthcare quality and ensure patient-centered care. Their active involvement helps prioritize crucial aspects of care and support within healthcare settings.
Research tips for people living with Parkinsonism
Research tips for care partners
Research projects
Below are the ongoing research protocols within the Advanced Care Team for Parkinson’s
For more information about these research projects please contact us.
Finally, we were not going through this alone.
Every member of the team was incredibly generous with their time, their knowledge and their compassion - before, during, and even after my mom’s death. The ACT team enabled us to make sense of a situation that had previously seemed impossible. Their thoughtful, comprehensive approach made an extraordinary difference in our lives. Finally, we were not going through this alone.
– ACT-PD care partner